Morning rounds just finished. The doctors basically don’t know what Barnaby is up to.
We came in early this morning to sit with him and it’s so hard to tell what are normal movements that we might have seen before and what are artifacts of what was happening last night. He isn’t having the kind of big fits that he was but we both agree that there is some movement that is more spastic than we were seeing pre-op. It’s complicated because jerky movements are also a part of where he is developmentally at 31 weeks gestational age.
It’s too soon to know how effective the surgery was, that will only be seen over time through the overall trend of ventricular dilation which will be monitored with head ultrasounds every other day.
As long as the symptoms continue to subside we will probably have to accept that we won’t really ever know what happened last night.
Meanwhile he is doing really well from a respiratory standpoint and the whole team wants to extubate and switch to cpap but he can’t wear the necessary “hat” to keep the straps in place because of his incision site from surgery yesterday so they are looking for creative solutions to make it happen.
Barnaby 
Make sure you have good and punctual grammar! A battle worth fighting!
Thinking of you all.