Author Archives: rossbeane

The NICU is an incredible place. The doctors and nurses who work here are both compassionate and knowledgeable. They have 64 rooms and a huge team of people. At one point during the early moments of Barnabys life I counted 12 people working hurriedly in his room and they still took time to part theContinue reading “NICU, Day 3”

Our big neurology meeting was a huge sigh of relief.   The doctors didn’t see the major abnormalities that they expected to after Barnaby’s birth story. They still want to do another MRI in a couple of days but they are “cautiously optimistic” about a possible best case scenario.  The neurology team removed his EEGContinue reading “Neurology, Day 3”

The biggest news this morning is that Ana slept a night for the first time in weeks. She is eating and hydrating and pumping breast milk.  Barnaby had a stable night and is still working towards the respiratory goals that will allow him to get an MRI.  Yesterday we met a volunteer from a parentContinue reading “Self Care, Day 3”

Ana is up and walking about. Her situation today compared to yesterday is night and day. Her recovery is speeding along.   Yesterday we had a through the glass viewing of Barnaby but today we may be able to hold him. His respiratory situation is improving by small markers. He is also medicated for someContinue reading “Day 2”

Today has been unbelievably hard.  Ana is doing well and is getting some much deserved sleep in the postnatal unit.  Barnaby is alive and his outcome is uncertain. The doctor used the word “stable” but only after many hours of interventions. He is breathing on a ventilator and his heart is beating and he isContinue reading “Day 1”